The hottest Parkinson's Substack posts right now

Bas Bloem wants to eliminate Parkinson's disease so he can make himself unemployed. He believes that it's possible to make significant advances in treating and understanding the condition.
Environmental factors, especially pesticides, may play a major role in causing Parkinson's. Bas argues that banning harmful substances could help reduce the disease's prevalence.
The healthcare system in the Netherlands is more efficient for Parkinson's treatment, with less waiting time for patients. They focus on teamwork among specialists to provide comprehensive care.

The journey with Parkinson's can vary greatly between individuals.
Remaining positive and proactive is important in managing Parkinson's.
Support and understanding from healthcare professionals and employers can greatly impact the experience of those with Parkinson's.

Falling can have both physical and emotional impacts, regardless of age.
Injuries can lead to challenges and vulnerability, requiring support from others.
Reflecting on experiences can spark insights and prompt a reevaluation of self-perception.

The current model for treating Parkinson's in the UK needs improvement.
Home Based Care for Parkinson's involves remote monitoring and more frequent interactions with healthcare professionals.
Investment in technology and staff training is needed for a wider implementation of Home Based Care in the NHS.

The podcast episode highlights the role of partners in supporting individuals with Parkinson's
Partners share emotional and practical challenges faced in caring for someone with Parkinson's
Different partners have varying ways of providing support and coping with the impact of Parkinson's

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The podcast Movers & Shakers discusses creating a charter for better treatment for people with Parkinson’s.
The charter focuses on timely access to neurologists, better information on diagnosis, and increased government investment in Parkinson’s research.
The charter also aims for access to specialized teams for Parkinson's patients and the introduction of a Parkinson's Passport for easier access to benefits and services.

The author has been seeking hard data about his Parkinson's symptoms to understand their severity and response to medication.
Monitoring technology like PD Monitor can provide detailed insights into symptom presence and medication effectiveness over time.
The data revealed that the effectiveness of the author's medication peaks before 11am, making it clear that eating a big breakfast close to pill time can impact absorption.

It's important to recognize when it's time to stop an activity due to health reasons.
Parkinson's symptoms can impact physical activities and abilities over time.
Memories and experiences from past activities can still be cherished even when those activities need to be left behind.

The podcast episode discusses the lesser-known symptom of speech impairment in Parkinson's disease.
People with Parkinson's, like Mark Mardell and Gillian Lacey-Solymar, can experience significant voice changes.
DBS treatment for Parkinson's can have side effects on speech, but specialized training like LSVT can help improve voice quality.

A Mediterranean diet may help manage Parkinson's disease
More awareness is needed about Parkinson's symptoms and its status as a fast-growing neurological condition
Patients play a significant role in educating and informing medical practitioners at events like the World Parkinson's Congress

World Parkinson's Congress offers a wide range of informative sessions
People living with Parkinson's disease show resilience and strength through exercise and positivity
Women with Parkinson's are advocating for visibility and awareness in the community