The hottest Parkinson's Substack posts right now

And their main takeaways

Category

Top Health & Wellness Topics

Five Years With Parkinson's

Rory’s Always On Newsletter • 2869 implied HN points • 05 Jan 24

🏥 Health & Wellness Personal Story Parkinson's

The journey with Parkinson's can vary greatly between individuals.
Remaining positive and proactive is important in managing Parkinson's.
Support and understanding from healthcare professionals and employers can greatly impact the experience of those with Parkinson's.

After the Fall

Rory’s Always On Newsletter • 4127 implied HN points • 16 Oct 23

🏥 Health & Wellness Injury Recovery Vulnerability Parkinson's

Falling can have both physical and emotional impacts, regardless of age.
Injuries can lead to challenges and vulnerability, requiring support from others.
Reflecting on experiences can spark insights and prompt a reevaluation of self-perception.

Home Care for Parkinson's - can the UK afford it?

Rory’s Always On Newsletter • 1081 implied HN points • 25 Jan 24

🏥 Health & Wellness Parkinson's UK Treatment Research

The current model for treating Parkinson's in the UK needs improvement.
Home Based Care for Parkinson's involves remote monitoring and more frequent interactions with healthcare professionals.
Investment in technology and staff training is needed for a wider implementation of Home Based Care in the NHS.

Movers & Shakers: A Parky Charter

Rory’s Always On Newsletter • 471 implied HN points • 10 Feb 24

🏥 Health & Wellness Parkinson's Podcast Advocacy Healthcare

The podcast Movers & Shakers discusses creating a charter for better treatment for people with Parkinson’s.
The charter focuses on timely access to neurologists, better information on diagnosis, and increased government investment in Parkinson’s research.
The charter also aims for access to specialized teams for Parkinson's patients and the introduction of a Parkinson's Passport for easier access to benefits and services.

Movers and Shakers: Partners

Rory’s Always On Newsletter • 1257 implied HN points • 28 Oct 23

🏥 Health & Wellness Parkinson's Caregiving

The podcast episode highlights the role of partners in supporting individuals with Parkinson's
Partners share emotional and practical challenges faced in caring for someone with Parkinson's
Different partners have varying ways of providing support and coping with the impact of Parkinson's

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Movers and Shakers: Losing Your Voice

Rory’s Always On Newsletter • 786 implied HN points • 15 Oct 23

🏥 Health & Wellness Parkinson's Treatment Therapy

The podcast episode discusses the lesser-known symptom of speech impairment in Parkinson's disease.
People with Parkinson's, like Mark Mardell and Gillian Lacey-Solymar, can experience significant voice changes.
DBS treatment for Parkinson's can have side effects on speech, but specialized training like LSVT can help improve voice quality.

My Parkinson's data - at last!

Rory’s Always On Newsletter • 1356 implied HN points • 12 Jul 23

🏥 Health & Wellness Parkinson's Data Analysis Treatment Monitoring Health tech

The author has been seeking hard data about his Parkinson's symptoms to understand their severity and response to medication.
Monitoring technology like PD Monitor can provide detailed insights into symptom presence and medication effectiveness over time.
The data revealed that the effectiveness of the author's medication peaks before 11am, making it clear that eating a big breakfast close to pill time can impact absorption.

Skiing with Parkinson’s - the final run

Rory’s Always On Newsletter • 1749 implied HN points • 14 Mar 23

🏥 Health & Wellness Parkinson's Exercise Mental health Physical health

It's important to recognize when it's time to stop an activity due to health reasons.
Parkinson's symptoms can impact physical activities and abilities over time.
Memories and experiences from past activities can still be cherished even when those activities need to be left behind.

World Parkinson's Congress - day 1

Rory’s Always On Newsletter • 904 implied HN points • 05 Jul 23

🏥 Health & Wellness Parkinson's Nutrition Research Awareness

A Mediterranean diet may help manage Parkinson's disease
More awareness is needed about Parkinson's symptoms and its status as a fast-growing neurological condition
Patients play a significant role in educating and informing medical practitioners at events like the World Parkinson's Congress

Parky People

Rory’s Always On Newsletter • 845 implied HN points • 06 Jul 23

🏥 Health & Wellness Parkinson's

World Parkinson's Congress offers a wide range of informative sessions
People living with Parkinson's disease show resilience and strength through exercise and positivity
Women with Parkinson's are advocating for visibility and awareness in the community